{Day 21} It's Getting Real

Dear Easton,

Yesterday they told us you could potentially be home by the end of the week. That shocked us a bit. As much as we want you home, it is super scary. Today it felt even more real though. They brought by the scale we have to weigh you on every day. They also left us the binder where we record your weight, sats, feedings, medicine, etc. They call weekly to get the info and we will take the binder to all appointments you have. A case worker also stopped by to show us all the stuff they will be ordering for you from Homecare--- a feeding pump, oxygen (just in case you need it), ng tube stuff, etc. Then, Homecare brought by your oxygen tank and oximeter and trained me on it. And THEN they asked for your car seat to do a car seat check (to make sure your oxygen is good while in car seat). When they ask for the car seat, you know they are serious! You are too small for the newborn outfit Nana got to take you home in so tomorrow I gotta go get you a preemie outfit!

You also had your swallow study today and kind of passed it. Enough that they are starting you on bolus feeds (a lot at once then a break, like we eat) and a speech therapist will start working on bottle feeding with you tomorrow. Sounds like you will be on continuous feed at night and bolus during the day, with a bottle or two coming from a bottle instead of the feeding tube. You will also have a speech therapist that will come a couple times a week to work on feeding with you at home. And we will be starting Early Intervention. A lot of things to do to take care of you, but we are so excited to have you coming home. We know things can easily change and the unknown future makes it hard, but we have faith that things will happen as the Lord will want them too and it will be good so, we're getting closer! It is hard to believe.

Love you,
Mom

PS Your hair is already lightening. Your eyelashes and eyebrows are now blond and your hair is reddish orange. You weigh 2.7 kilos. And Nana came to hold you for the first time! She was super happy.