Field Trip - Roy Fire Department

Easter

I wanted to take a few pictures of the boys in their Easter outfits, but boy do they not sit still! We got a few decent shots that capture their relationship and personality--- shirts not tucked in, laying on the ground, and everything.

The Meaning of Easter

After patiently working with Easton for an hour tonight trying to get him to go to sleep with his CPAP mask on, I realized that words can't describe the amount of heartache I have had for this sweet boy since he was born. It is heartbreaking watching your child suffer and struggle to understand that what you are doing is in his best interest. Then I realized that is what this whole weekend is about. Christ died for each of us. To be able to comfort us and provide us with peace, knowledge, understanding, and love. To give us purpose and direction. To give us hope. I can't imagine the pain that Heavenly Father felt watching his son suffer but the pride he felt for the strength and selflessness His Son had. I see that in Easton. He has endured so much and yet done nothing wrong. He chose this. His strength amazes me. And because Christ lived again, I know his suffering will one day end. That he will have a perfect body that will live forever and that he will be rewarded and blessed for his example on this earth. I can't thank him enough for all he has taught me over the past two years. I'm so grateful he is mine. {New record on the CPAP... 23 consecutive minutes.}

We Will See Papa Todd Again

Because Jesus Christ died and lived again, I know we will see Papa Todd again. So grateful for that knowledge. ‪Picnic with Papa Todd today.

Zoo Trip

After Easton's doctor appointment, we decided to head to the zoo. I told Cooper to get one of his hats to wear before we left. He yelled, "I want to wear Papa Todd's hat!" Almost a year later and he still talks about him every single day, which I love. I know one day his memories of him will likely fade, but I'm glad we have pictures. My dad would be so excited to watch Cooper play t-ball this summer and grow taller than him. To see Easton growing so big. We miss him so much.

Diagnosis: Sleep Apnea

We got the news today that Easton has sleep apnea. Talk about a pit in my stomach. I had a feeling they were going to say it, but it was still a punch to the gut to hear. He wasn't happy about being fitted for a CPAP mask. We will see how this goes. He has been through so much. As a mom, I just wish I could take all the pain away for him.

Joys of Being a Mom

Oh the joys of being a parent! Yup, that's my child that threw up and went right back to sleep. It is all over him. Thankfully I went to check on him before laying down. Can't tell you how many vomits I have cleaned up over the past three days between him and Easton. He has acid reflux that just seems to be bad sometimes and of course Daddy is at work tonight.

GTube

Two weeks post surgery and we were finally able to take the extension off Easton's gtube. Two more weeks and the kid can finally have a real bath again! So far--- only thing I like about gtube is I don't have to put it back in when he throws up. He seems to not be bothered by the tube. Otherwise, I hate it so far. It has caused Easton to start throwing up again. Yesterday it was every.single.feed. So we have been a bit disappointed, stressed, and frustrated. We are hoping his body figures all this out.

These are pictures from his surgery. He has his gtube placed, gallbladder removed, and his circumcision. He woke up surprisingly calm. He now has four new scars to add to his tummy and his gtube glows!

And the cute little man before surgery:

February

February was a busy month. Constant doctor appointments. Easton had his surgery to have his gtube placed and gallbladder removed. So far we haven't been a fan of the gtube. It seems to be causing Easton to throw up again. He is growing though, which is good. We were able to come home the day after surgery. We are starting to adjust to the tube--- cleaning to it, keeping it covered with clothing. Easton doesn't seem to be bothered by it. He has taken a step backwards on eating/drinking since surgery, but we're hoping to increase it. He also had a sleep study since he is a HORRIBLE sleeper. Wakes up multiple times an hour most nights. We will find out March 11th if there is an unknown reason for it. They did have to put him on some oxygen when he cried during the study.

We had physical therapy today. She thinks Easton had a mini stroke at some point (TIA) because his left arm is tight and he has always heavily favored his right arm. Could explain why a few months after his birth I felt like he wasn't using his left side well. We also started feeding therapy again with a new therapist.

He is walking! Not a ton, but he is so much more stable and starting to trust himself to let go. He looks adorable doing it.

Life is good. We're hoping Easton's third open heart surgery isn't for another 18 months. Cardiologist said we have 18 months to gain 10 pounds. Can't believe we're so close to the third surgery already! Cardiologist told us to enjoy the days. I always hate that, but it's true.