We have been admitted two more times since my last post. The last time resulted in an nj tube (feeding tube to the intestine). This way he can't throw anything up since the stomach is bypassed, but he has still been very wretchy. He is now occasionally throwing up bile. We are currently here. We had a cardiology appointment yesterday. He said his heart is doing what it needs to be right now, but he was not happy with his lack of weight gain. He just isn't growing enough. He wanted us admitted and to meet with GI. We have since ruled two things out. He does have gallstones, which is weird for someone his age. They don't think this is the problem though. His blood count is also low again, but his oxygen and heart rate are fine so they are putting of a blood transfusion if at all possible. GI thinks he needs to grow to give more room for his stomach. At some point a g-tube might be considered. Especially if he won't take a bottle. Since throwing up a lot and being on continuous feeds he seems less and less interested. It doesn't mean he will always be that way and hopefully when we get to the point where he can keep food down that he will pick the bottle right back up like it was nothing. If so, no g-tube. If he doesn't take the bottle, it will be considered.
The days all seem to mesh together anymore. I feel bad that we are juggling Cooper around so much. He misses us. I am at the hospital and Chris has to go to work. He is getting to do fun things though. Enjoying time with Nana, playing with friends, and even the Treehouse Museum with Aunt Rachel. We have enjoyed someone doing the 12 Days of Christmas for us. Cooper loves going to the door and getting the present. The first time he did he was so confused when no one was outside the door. We enjoyed putting together a gingerbread train on the 2nd day. We have so many watching out for us and helping us. We feel very loved and blessed.
No comments:
Post a Comment