Fourth Times a Charm?

We've been in the hospital since Monday, Dec. 15 with Easton again. We came down for a cardiology appointment and he wasn't happy with his weight gain. He said it shouldn't be this hard. He had Easton admitted and some tests were done. We haven't found the problem or solution, but we have marked some things off the list. His stomach isn't turning and he doesn't have piloris stenosis. We did find that he has gallstones, but they don't believe they are causing the problem. He has been put on medicine for the gallstones. They also started another medicine that is known to decrease retching, but takes about a week to see a difference. We tried a different formula and he got bloody stools so back to Elecare, a special hypoallergenic, expensive formula. We have continued to get KUB xrays to make sure he doesn't have NEC. It's where the gut/bowel starts to die. It's common in heart babies because of poor blood flow to the gut. It can kill him so we are watching closely. If he ends up getting it, he is automatically in the hospital for two weeks. One week on TPN feedings through a PICC line. This gives the gut a break so it can heal, but they have to catch it in time. Otherwise, we get a lot more problems and risk death. Despite continued bloody stools here and there he hasn't had a positive xray. We were getting all ready to discharge today, probably an hour away, and his heart rate decided to sky rocket. It was in the 190s-200s for at least an hour and he was just laying there. They gave him Tylenol and he doesn't have a fever. So, we will see if they let us go home today or not.What a bumpy road this journey is. I keep reminding myself that it could be worse and he is still here. It breaks my heart to know that one day he will be gone. I just pray the Second Coming occurs before or that it's after I die as an old, old lady. ;o)